Every year, 1 in 100 babies is born with congenital heart disease (CHD). It’s a number the CHD community knows well, but one the world is still catching up to understand.
That’s exactly what Project 1 in 100 is working to change.
Awareness That Rises
Awareness isn’t static. It doesn’t wait. It grows, it amplifies, and it rises.
Project 1 in 100 was created to shift how congenital heart disease is seen, understood, and prioritized. Through community, storytelling, and action, they are building momentum around a simple but powerful truth:
The 1 in 100 deserve to be seen. Because when awareness rises, so does everything that follows – support, research, innovation, and ultimately, outcomes.
Move with Heart: A Community in Motion
This year, HeartWorks is proud to join Project 1 in 100 and Renata Medical for the Move with Heart Virtual 5K – a powerful opportunity to turn awareness into action.
When: Starting April 10 at 10:00 AM
Window: 100 hours to complete your distance
Where: Anywhere
Walk, run, ride – it’s your choice.
Complete it all at once or break it up over time. However you move, you’re helping move this mission forward. This event is designed to meet people where they are – because every step, every mile, and every participant contributes to something bigger.
Why It Matters
For families living with CHD, awareness isn’t just about recognition- it’s about progress.
It’s about:
- Earlier diagnoses
- Better access to care
- Stronger research investment
- More innovation in treatment
Events like Move with Heart help bring visibility to a condition that affects millions, while building a community that refuses to let it be overlooked.
Designed with Heart
Project 1 in 100 has partnered with Heart Like a Mother to create custom shirts and totes for this year’s event. A portion of proceeds supports the Heart Like a Mother Foundation, which provides travel assistance for families seeking cardiac care.
It’s another way this event goes beyond awareness – offering tangible support to families navigating CHD.
Powered by Partnership
This year’s event is proudly sponsored by Renata Medical, a leader in pediatric CHD innovation. Their support reflects a shared commitment to advancing care and improving outcomes for children born with heart conditions.
Together, organizations, companies, and families are coming together to create real momentum.
Join the Movement
Awareness doesn’t rise on its own. It rises because people choose to show up.
Whether you walk a mile, run a 5K, or simply share the message, your participation matters.
Join us. Move with heart. Help change how the world sees congenital heart disease.
Stay Connected
Follow along and be part of the growing movement:
- Project 1 in 100: @project1in100
- Renata Medical: @renata.medical
- Heart Like a Mother: @heartlikeamother
Moving Forward, Together
At HeartWorks, we believe progress happens when people come together – families, researchers, partners, and communities – all moving toward a shared goal.
The Move with Heart Virtual 5K is more than an event. It’s a reminder that awareness, when powered by people, becomes momentum.
And momentum is what moves the field forward.
